Friday, July 30, 2010

Back to Philly

So, Philly called and said they want their girl back. So, we are flying back tomorrow, and we will be there through next Thursday. Madison will begin the follow up tests and evaluations associated with the MOMS trial on Monday morning at CHOP. And although I am really looking forward to seeing everyone again, and being in that place again...part of me is really starting to get nervous. I have such great memories of our time in Philly, mainly because everything went so well for us and for Maddie. And it only recently occurred to me that we might not get the great reports we are hoping for. What then? It seems that recently many of our other SB buddies have been getting mixed results back. We keep hearing about kidney reflux and such from those who have gotten through their follow ups. Maddie is just coming off of her 1st UTI, and now taking preventative meds to keep them away, and I'm finding myself really anxious about the urology visit and the videourodynamics test. It will be the last test she receives on the last day of her follow up. Monday is the physical and develomental evaluations. Tuesday is the MRI of brain and spine, and Wednesday is the renal/bladder ultrasound and the videourodynamics. Please pray for great reports on every day. Whatever happens, we'll deal with, but I'd love for things to keep going well for as long s possible.

Mason is so excited to be spending a special week with my parents. They have so much lined up for this kid, I'm certain he'll be bored stiff when he comes home. Last night he stayed up way past me and Chris, gathering all of the toys he wanted to bring with him. It was the most random collection of toys I've ever Aquadoodle, a dancing hamster, his Tag books, a jack in the box, a plastic christmas tree, his tool kit and a green name a few. But they're all going , and he's psyched. So, I guess I'll get back to my packing...I'll try to update sometime next week. Thanks for all the thoughts and prayers!


  1. Praying for a safe journey, more good memories, and good reports! I know it's nerve racking so hang in there! Let us know how it goes! :)

  2. Joining Joanna and David in their prayers for safe travels and great reports...


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