So it’s October again, which means pumpkin spice and all things fall. It means cooler temperatures, and anticipation of holidays to come…It means football teams rocking the hot pink again. These are all good things! Several medical conditions are actually observed in the month of October, but one hits closer to home for me…
October is Spina Bifida Awareness Month. And if you know my family, you probably know my little girl, Maddie. She is 6 years old, and was born with Spina Bifida. There are lots of things I could tell you about Maddie…the things that I think make her special, but those may not be the things you re wondering. I find that as we get older, it becomes harder to communicate without fear of ignorance or offense. I get it. Children are so honest and innocent, and I envy that. I love how they can easily ask Maddie why she wears braces, and she can just as easily answer…and they move on. How simple. It can be more complicated for us…So I thought I might try to simplify it for you.
In honor of October being Spina Bifida Awareness month…Here are the questions you always wanted to ask me, but never did.
- What is it?
- Why does she wear braces?
- Is it Permanent?
- Will it get worse?
- Why does she have it?
So that’s it…Those are the questions I get asked the most, and the least. I hope this helps, and I hope that, in the future, you feel more comfortable asking me questions. I'm an open book. If I could leave you with one thing remember this: Spina Bifida is a permanently disabling condition that affects every aspect of our lives, BUT it does not define my family, or Maddie. We’ve learned to live with it, and factor it into our daily routines. Beyond the month of October, you won’t hear much about SB from me. It’s a conscious decision that I’ve made to keep our lives as normal as possible. I want people to see beyond the braces, and see Maddie for who she is, and all the incredible gifts that she has to offer…and more importantly, I want her to see herself the same way. She is an amazing, smart, funny, completely capable little person…who doesn’t just get by, she thrives.
bowl a thon...Thanks!